grrrrrlar

grrrrrlar t1_j9uimhy wrote

Wow! Similar to my wife. She’s got two setons now and potentially having another surgery to address her abscess that keeps coming back. She’s on infliximab (inflectra, I think remicade is the same? so many names for one medicine!). She’s almost at the two year mark, and has gotten a lot better- just those pesky abscesses are the main issue!

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grrrrrlar t1_j9skr5b wrote

My wife has a similar story. No kids but got abscesses and fistulas/fissures from untreated Crohns, she lost the same amount of weight as you. It was painful to watch. Do you have anything that has helped? It is likely you have ptsd, it’s common in those with chronic illnesses/autoimmune. I’m hoping you’re feeling better <3. You got this!

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