47q8AmLjRGfn
47q8AmLjRGfn t1_iz1zfzo wrote
Reply to comment by [deleted] in New type of surgical robot used to remove throat tumour by diacewrb
I am facing this surgery plus fu stomach renoval. Having spoken to others who have gone through it many are doing well, some return to an active lifestyle including Jujitsu...of course I am only speaking to the ones who survived.
47q8AmLjRGfn t1_izfogzx wrote
Reply to comment by gloomdweller in New type of surgical robot used to remove throat tumour by diacewrb
Great advice. Comments from the medical side tend to be casual during a conversation and it's not stressed enough how important it is to keep moving.
Thankfully, there are some great support websites like smartpatients where others do stress the importance in their experience. I do know they get you out of bed as soon as possible to get moving, whilst plugged into all the machines in ICU.
The info coming from the hospital is not complete. I'm on the third FLOT session tomorrow and I've only just found out that regardless of how much the tumour shrinks they still remove the tissue which was affected and shown in pre chemo pet scans / laprascopy etc. I've spent a long time trying to find extra treatment which will further shrink the tumour with the attitude to minimise surgery. A patient I'm talking to online has finished her FLOT , CT shows no tumour and she was excited to think that means minimal surgery.
Appreciate the advice, thank you.