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Jantra t1_je4w9ja wrote

I did! My joints are doing surprisingly well given how bad my condition is. I very rarely ever get migraines thankfully.

The muscles of my jaw were the start of it, but now it’s jaw, neck, shoulders, and creeping down my back. I am beginning to think that my stomach is also being affected as well. Everything slowly cramps up tighter and tighter and tighter and nothing we have tried really stops it other than THC/CBD combos, but I dislike taking higher doses because of how much it makes my head feel spinny and the lethargic feeling. Been through three of the top specialists at UPenn and Jefferson (all in Philly) and have yet to have a doctor fully figure out what’s going on. They thought it was a form of Dystonia for a long time but now they have classified it as unknown again.

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recursive_while_loop t1_je7h6a6 wrote

Damn! Well glad the botox helped and that you figure it out. I had a thing that only got into the medical journal two years ago so that one took a bit of time to figure out too.

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