Can attest to the middle paragraph. I'm 25 years old; disabled child (in so far as relation, not necessarily mentally or age-wise) this entire time and my mother was the one that took charge.

Now, after 25 years, things are /actually slowing down/, I'm stabilized, and we're finally able to start relaxing and for once, only a single appointment in this entire year is scheduled.

We're flummoxed. Our entire identities have been about taking care of me. Now we're both sort of floundering and helplessly wondering 'Well what do we do now?' since we've never known a life beyond.. well, keeping me alive and healthy.