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Archangelthrowaway OP t1_jaevawi wrote

I understand you’re concerned but it’s opposition like this that is the reason for downplaying patients’ suffering with empty nose syndrome in the first place. I’m free to share my story and ask for advice. How else are people with medical conditions that have no cure supposed to go about solving it if they don’t ask the public for help? Clearly doctors and lawyers aren’t doing anything. I’m basically relying on empathy from strangers and researchers at this point to keep going. I can ask for advice..

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