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metalmaxilla t1_jaeqst3 wrote

Patient-funded stem cell research is a SERIOUS red flag for snakeoil salesmen preying on people's desperation. This is just not the way legitimate things are done. Harvesting and using a patient's own stem cells allows them to circumvent regulations that are in place to protect you.

As you said, ENS is not that rare. If a university is on the cusp of achieving a legitimate cure, they're going to finance it themselves... not make you front the cost. Universities love advancing fields of medicine, but it doesn't involve the patient's dime (e.g. face transplants). Regenerative medicine is going to be the future, but we're not there yet, and you paying $4mil is not going to push what they're doing into the realm of legitimacy. They would be more than happy to finance your procedure if its success would enable them to claim that advancement.

Very sorry you've been enduring this, OP.

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Archangelthrowaway OP t1_jaevm44 wrote

So the university’s explanation to me is basically : we have a lot of organs we are working on and we will go with whichever ones have funding behind them. They applied multiple times for grants for turbinates but got rejected. They did get approved for livers and kidneys though I believe due to it’s more widespread need. So that’s why I’m kind of in this situation. Thank you for reading my story ♥️

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