Viewing a single comment thread. View all comments

NegativeRow9871 t1_j8y9l9t wrote

We have been inpatient for months at St. Louis Children’s (affiliated with Barnes Jewish and staffed by WashU physicians) and they are INCREDIBLE. Springfield doesn’t have the specialists we need so off to STL we went. STL Children’s is the #1 pediatric hospital in the state and a top facility in the Midwest. The cafeteria there is not as good as Cox. You can also order food to your room through Moose on the Loose. As your nurse for a menu and their phone number. The food through that is better than the cafeteria. Have you seen someone from social work? They can help you get more meal vouchers when the family centers are closed.

1

backgroundmusik OP t1_j8yda3v wrote

I have vouchers and we've found the play room on 8 so she's having a blast right now.

1

backgroundmusik OP t1_j93bd99 wrote

The facility is supportive. Wish I could say the same about her dad or my family

1

NegativeRow9871 t1_j94d6g0 wrote

Was that you in the laundry room today sitting by the window?? I’m so sorry you’re going through this and that the lounge staff was not helpful when you asked to use the phone (if this was you).

1

backgroundmusik OP t1_j94do7b wrote

Sorry. I couldn't put a number up because I didn't have one and my phone wasn't working and my mom got me a card but I wouldn't work. I'm off my meds and can't go to the dispensary around the corner to try to calm myself because none of our family is coming. Baby girl is feeling better, so there's that, but I'm not ok.

1

backgroundmusik OP t1_j94e47m wrote

And later I walked out the door, barely over the threshold and turned around because I decided it would be better to stay. They stopped me for coming in without registering when they say and watched me just stick my head out basically. I didn't feel welcome anymore so I went to the bathroom nearby to cry

1

backgroundmusik OP t1_j94e87g wrote

And in all this I know I'm selfish because so many people here are going through so much worse and my kid is ok I should be grateful and I am.

1