Viewing a single comment thread. View all comments

Weird-Fox-4036 t1_iz93ie2 wrote

Lived super healthy, got covid, developed IBD, eat insanely healthy, meds ... And I'm still stuck with this stupid thing. There's also an auto immune response that just can't be ignored

64

cgarcia123 t1_iz9eid5 wrote

My IBD like gastric problems stopped 2 years ago when I started making (and eating) my own yogurt with the L. Reuteri probiotic. It's basically about using L. Reuteri capsules as a yogurt starter (look up youtube videos), and it's fun if anything. The yogurt this makes is more like cottage cheese but still quite tasty. Nowadays I usually start my yogurt with a 10 to 1 mix of L.Reuteri and normal yogurt, so the end result looks and tastes almost like store bought, but certainly contains a lot of L. Reuteri.

10

Weird-Fox-4036 t1_iz9f2oa wrote

Thx for meaning well, but I'm on probiotics, prebiotics and only pro positive gut microbia and anti inflammatory food. I got severely disabled through covid, due to developing an autoimmune disorder. As long as those stupid auto antibodies are destroying my body, I won't be able to get rid of ibd. That's exactly the problem I meant, so many think that you just don't eat right, do the right things.. when there is the possibility of auto-antibodies inflamming your gut ..

17

cgarcia123 t1_iz9lg6c wrote

Sorry to hear that, I understand what you mean, hope it subsides eventually

6

uglylittle t1_izdyntb wrote

My son developed Crohn’s suddenly in 2020 at age 14. He’d never been sick a day in his life, is a healthy eater and an active athlete. It’s so frustrating hearing non-IBD folks’ opinions on this debilitating disease. CBD might help with some symptom relief but omg it’s not some magic elixir for seriously sick people! The reality in our case is that my son needs a medical infusion every 8 weeks for the rest of his life in order to live a “normal” life.. and those infusions cost nearly 2k a pop in the US. Dietary changes are not enough.. in my opinion environmental factors AND the food we eat are to blame for the rise of IBD in the Western world.

2

shamanstacy t1_izdegg6 wrote

Try adding CBD to the regimen. It often helps with inflammation and the autoimmune issues that cause it. Just my experience working with many different patients.

0

Weird-Fox-4036 t1_izdfa5z wrote

I obviously do this already....

1

Weird-Fox-4036 t1_izdfff7 wrote

I said that I already take everything anti inflammatory available..

2

Weird-Fox-4036 t1_izdffnn wrote

I said that I already take everything anti inflammatory available..

1

uglylittle t1_izdyyfi wrote

I’ve actually heard a lot about this and have been wanting to try. Thanks for this info. Do you use a yogurt making machine?

2

cgarcia123 t1_izfihxv wrote

You can do this with any yogurt machine, but it's important to be able to get 37C with some accuracy. A sous vide stick in a water bath and some glass jars is a good way to do it, and you can make a lot at the same time. It can take 16 to 24 hours for the milk to curdle.

1

Starrynite120 t1_iz9xalg wrote

I was diagnosed about 5 years ago. This year I finally got to a stable place. Major diet adjustments and different meds for different problems got me there. I’d recommend talking to a dietitian. When I did, I discovered foods I was eating every day were causing me problems, even though they’re healthy (like apples). With that sorted I can go days without meds now (6 months ago I was doing 5-10 pills/doses a day of various medications). Maybe you’ll find something helpful too.

1