Mine started as psoriasis back in 2011. I had patches on my legs and scalp. It was annoying, but manageable. I also had frequent pain and swelling in one pinky toe, with on/off hip and wrist pains. I was also a heavy drinker.

I started doing a lot international work with lots of travel and stress. I was in a hotel room hungover one morning in the fall of 2014. I woke in lots of pain. Both feet and ankles were swollen. Most toes were stiff and swollen. I started getting pains in various joints.

I got back home and saw a doctor. They diagnosed as psoriatic arthritis due to my psoriasis and the swelling of toes.

I went on methotrexate first. I also stopped drinking (8 years yesterday). The methotrexate knocked down all the swelling and eased some pain, but did nothing for the psoriasis. That was fall of 2014.

Sometime in 2015 I switched to Enbrel. At that point, I still had skin issues and lots of pain, but little swelling. The Enbrel seemed to help a little, but really not much, and also did nothing for my skin.

In 2016 I switched to Stelara. That helped the pain AND completely cleared up my skin. No more swelling, but still morning stiffness and occasional flareups of pain.

About 3 years in, the Stelara just stopped working. My skin was always great, but my pain and stiffness increased, especially in the morning.

I switch to Cosentyx in December 2019. That felt like when I started Stelara, but even that has stopped being as effective. I have some skin issues on my scalp now and the arthritis can be severe in the morning. I’m looking at options for what I can do next.

I find exercise helps a lot. Mornings are horrific, with intense pain in feet and hands. But it goes away as I move. But sometimes the pain lingers all day like a toothache.

My plan now is to exercise more and stretch. I’ve found stretching at night right before bed helps with the mornings.

It’s a scary disease in how variable it can be. It really makes me wonder how much time I have left.