Theletterkay t1_j8cggi2 wrote on February 13, 2023 at 7:18 AM

Reply to comment by livelylilac703 in Chinese researchers have reported what they claim is the world’s youngest person diagnosed with Alzheimer’s disease, which may overturn the conventional perception that cognitive impairment rarely occurs in young people. by Wagamaga

The relief is that there are tools to help diagnose it early enough for intervention. Otherwise a child developes these symptoms and its just death and suffering.

moredinosaurbutts t1_j8ci5co wrote on February 13, 2023 at 7:41 AM

Thanks, this is exactly what I was clumsily attempting to communicate. There may be more peace with a late diagnosis, but by then you've been robbed of any chance. Better a small chance than none at all.

livelylilac703 t1_j8g7x1i wrote on February 14, 2023 at 1:53 AM

I don’t mean to sound aggressive in my responses but even with intervention, there is no cure and it’s fatal. Intervention may slightly increase life expectancy, but even then, imagine an individual who is stuck in the body of a teenager but their brain is so deteriorated they can’t walk, talk, sit up, communicate, eat, or drink. That’s what happens at the end when you’re looking at this disease, intervention or not. I pray they find a cure.

Theletterkay t1_j8gn9cx wrote on February 14, 2023 at 3:54 AM

But without being able to diagnose it, you may live wondering what you did to cause it, or put the child through many painful or traumatizing treatments, thinking you are helping, but really you are just wasting their time with added suffering. With diagnosing you know what it is, and you know there arent any cures. So you can focus on comfort for them and helping them enjoy any amount of life possible.

And, yes, I absolutely do know the disease well. My sister in law is a home care taker of the only known family to have 2 children with the disease. One is 15yo now, the other is 11yo. And while its true they cant do or communicate much, they smile and enjoy her company. They snuggle with her for movies, which they have favorites they enjoy. They have favorite foods, which they get spoiled with often. If they get excited about something, their parents and caretakers go out of their way to make sure they make those girls happy and fufilled. Diagnosing keeps those girls out in the world rather than cooped up in a hospital hoping to find a cure that doesnt exist. That's definitely worth something.