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ThrowRAselfdestruct OP t1_jedoyer wrote

i know this is likely unrelated but i grew up with (and still have) a super rare esophagus disease called eosiniphilic esophagidas, which affects my digestion of foods and causes me to be unable to eat any gluten, dairy, wheat, eggs, nuts, soy, pork, fish, and some fruits and vegetables, with an anaphylaxis to egg. when i eat the foods im allergic too i cant digest them and it slowly burns a hole in my esophagus and raises my red blood cell counts. the vast majority of people who have this disease are on feeding tubes. i am not. because when i was 7 i went off all food for an entire year and had only formula drinks, then would go to a hospital once every 3 months, been given knockout gas (everytime had fear of never waking up lots of anxiety attacks), get an upper endoscopy, and then they would test around 3-5 foods on me to see if they would make me tick, and if i didnt react to them i would get to add them to my diet. this lasted until i was 15.

i have had a couple of near death experiences with anaphylactic attacks, even one where my throat was completely closed shut. childhood was pretty alienating with being so different to everyone around me but i guess we made it work.

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