Submitted by ninjascotsman t3_10m52gp in news
X-the-Komujin t1_j62anrv wrote
Reply to comment by zalipie in Boarding school ignored teen’s sickness complaints before she died, ex-staff say by ninjascotsman
I appreciate your comment. All too often institutional evil goes unnoticed especially in rural communities. No one believed me when I told them this school was bad for me, but everyone was completely surprised when I failed in my later education. Meanwhile I have fairly regular nightmares over my experiences there that are sufficiently bad enough to wake me up mid-sleep and I'd be incapable of falling back asleep until 12+ hours later. I probably need therapy for this, but I know I won't be able to get it due to insurance issues.
For the longest time I was pretty much left behind and was severely lacking in education and even my personality took a turn for the worse. Those schools don't help you. They give you contempt for authority and a pessimistic and cynical outlook on many subjects. Some people may say that's how I should act towards a lot of subjects, but this was an ingrained childhood experience that would negatively impact you at a core level. I still don't get how people were legitimately stupid enough to try and goad severely autistic people into writing or speaking when a lot of them were non-verbal. I have the disability yet people in a position of authority who lacked my disability chose this path for us and thought it to be the best way of approaching things.
They thought "coping" was the catch-all solution to fix the behavior of students there, and even the severely autistic people can get openly annoyed by the staff. It would not be an exaggeration to say that I think they look at severely autistic people like animals due to their lack of communication, but I always remember them lashing out without warning if they got upset enough because despite their disability, there's still a person in there. One memory that fails to escape me is a bulky red-headed severely autistic high school man kept having staff be hands-on and violating his personal space which he eventually without warning grabbed the wrist of the staff member nearby and squeezed hard enough to cause pain while bearing teeth and eyes wide open. That's when the aforementioned "security guard" took him out of the room.
When I left high school, I was highly estranged and had a warped worldview. Being a part of internet communities helped me grow up more mature, more intelligent as I had the ability to learn things at my own pace and need, and it changed me from someone who was originally thought to be a lost cause in the education system. Yes, people truly had that level of contempt for me and so very many others. When I went onto chat rooms and participated with other people, I learned how to participate with others and put that experience past me, even if I still have nightmares from it years later. Some of the only people in my childhood who treated me with any sort of kindness was people of the days of Digg, Reddit, IRC, and Discord.
I ended up a better person long-term, even if I was and to an extent still am fucked in life. And there's no amount of thanks I can give to the people who showed me kindness online at the absence of everyone else in-person.
herbivorousanimist t1_j62j1k6 wrote
I’m not surprised you found good people when you finally got the chance to look for them, you come across as an absolute sweetheart.
You seem honest but humble, and vulnerable but strong. Also you come across as very kind yourself.
AutisticAndAce t1_j639922 wrote
Hey, another autistic person who learned social stuff via the internet. I was in the special education program in public school to some extend and honestly just got traumatized. Discord, Minecraft servers and various online fandom communities taught me how to interact with people.
james_bond_junior t1_j6323uf wrote
Have you heard why defining someone as “severely autistic” or “lightly autistic” is not good? I’m autistic, if you’re interested let me know and I can type more about it.
X-the-Komujin t1_j633nyt wrote
It's a spectrum and no single case is alike, but many neurotypicals don't understand the spectrum so I define it as that. The truth is the spectrum isn't a "line of intelligence" rather it is how severely the autism affects a certain person's capabilities.
I have seen those terms used as insults, but I disregard that when speaking in an objective manner.
LizbetCastle t1_j6464y2 wrote
Just by the way you write about others and your own experience, I can see that you’ve done a ton of self work and have a lot of compassion, I’m sorry that it came at the price of what sounds like PTSD. I hope someday you can get the support you would like, because someone with your gifts could make a huge difference in the world.
james_bond_junior t1_j67tj5e wrote
Since the “light” and “severe” adjectives don’t have a medical basis, they are based on how the autistic person makes them feel and hasn’t got to do with what the autistic person is actually going through in that moment or during other parts of their life. Someone could struggle to take basic care of themselves at home and be going through intense anxiety in the moment which will cause a non-verbal shutdown later, but someone they are speaking to could be surprised they are autistic and claim it must be “light autism”. If they interacted with that same person during the shut down, it might be “mild” or “severe”.
Having said that, I can understand how that language could help to get certain ideas across to people who don’t understand autism.
AhabMustDie t1_j64clef wrote
I'm interested — is it the same argument for why the terms "high-functioning" and "low-functioning" shouldn't be used?
What terms do you think are better? Profound autism? High-support vs low-support needs?
james_bond_junior t1_j68vfjv wrote
Yeah exactly, it’s the same thought process behind that. So you would talk about it in terms of some or other specific support need. Someone might not be able to go to the grocery store alone, but if online shopping is available it’s not something that might have an impact on their life and therefore isn’t a support need.
snowbirdie t1_j654uzo wrote
I feel that you should write a book on your experience.
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