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kjuneja t1_iyzwrds wrote

Great graphic!

This is why a distributed ledger for personal healthcare records needs to exist and be run by an NGO

any healthcare provider should be able to commit given the individual has provided consent. Permissions and time boxed windows can provide secure access to providers as needed

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chrisdancy OP t1_iyzxb02 wrote

I have seen so many attempts to make it easier for people over the years, but they all fail. Reading a lot of the comments helps me understand there is just a lot of stigma people have over their health information / bodies and the repercussions that come from having that information sharable.

Do you think we will see something in the next 30 years? I keep thinking that the phone operating systems will make it a reality at some point. Seeing all my lab work on my phone in the health section blows my mind. I've had to manually manage all that for decades.

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landodk t1_iz04fjs wrote

I think someone needs to create an app that PTs can choose to use to share info. I think the HIPPA protections providers have on our data makes it hard to make easily accessible.

For the graphic, I think it should be flipped and consider that people read top to bottom, left to right.

maybe age bars on both sides so information is closer together.

Scales for weight, scalpel or surgeon for surgical procedures. I thought you got stabbed several times.

Regardless, I think this is a cool way of displaying medical history

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chrisdancy OP t1_iz053rz wrote

I got asked about an app. That's not really my thing. That said, the simple powerpoint template seems to help folks.

Unfortunately the mods pulled this off the sub again. Not sure which rule I broke this time, but when I mention mental health, chronic illness or LGBT, things disappear here.

If I find out, I'll let you know, I appreciate your feedback.

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landodk t1_iz05y9a wrote

Unfortunate, this is more attractive than what’s usually posted

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chrisdancy OP t1_iz065l5 wrote

I got about 200 different doctors and nurses who sent me messages saying it was perfect for what they would want from patients.

I'm just confused about why the mods keep deleting anything I post.

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darthjazzhands t1_iz044ui wrote

1968 babies unite!

This is great work. I’m glad to hear it has helped your doc visits go more smoothly. This would also really help caregivers like me when taking their loved ones to the doc. Food for thought: post this on r/dementia, r/caregivers, and r/Alzheimers

Thank you for your hard work on this

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chrisdancy OP t1_iz04fs9 wrote

Thank you, the mods pulled it again. I think the mental health / chronic illness / LGBT stuff is too much for "data is beautiful" really makes me sad. I've had this happen over the years on this particular sub.

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darthjazzhands t1_iz05ikd wrote

Sorry to hear that. If you want some advice, let me know. Best of luck.

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chrisdancy OP t1_iz05z23 wrote

yes, would love any advice. I can't figure out why anything I post gets targeted. Last time I posted something that was pulled in 2015 there wasn't the rule on "Personal data" so I didn't see that was new.

With the uptick in attacks against disabled, LGBT and the chronically ill, it makes me really paranoid around safety issues in subs where health information is suppressed.

I see so many people post their weightless journeys, phone call data and all sort of other things here, but these straight why guys usually have some sort of understanding of the sub that is missing from the rules on the side bar.

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darthjazzhands t1_iz09c4a wrote

If I had to guess, people are not comfortable seeing what appears to be your private medical history.

This will be oversimplified but in marketing and advertising we Create sample presentations for each target market we are trying to reach. If your research shows there are 3 top markets to go after, let’s say 60yo Diabetes patients, 40yo cancer patients, and Family Caregivers of 80yo parents with Dementia, then create a unique presentation for each target using datapoints specific to each market. If we can only create one sample, then select the group who is likely to use your product the most, aka the “heavy buyer.” Does that make sense?

Edit: thanks for the award, kind stranger!

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chrisdancy OP t1_iz09j68 wrote

Yup!

I guess I try to put a fake name on it next monday and see if the rules change again!

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darthjazzhands t1_iz0b40q wrote

Ok. I’d also post it in friendly spaces like an lgbtq+ sub, a mental health sub… ie. don’t be married to this sub. Post in places where there is interest beyond raw data

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drc500free t1_iz1473l wrote

The collection of all info in one place is one part of the problem.

The other is that existing EMRs are receipts for insurance reimbursements, not true health documents. There's not going to be a standard way to code a previous abusive relationship.

A distributed ledger doesn't help with that, unfortunately the tail is wagging the dog and the centralized control lies with the insurance carriers rather than the providers. So the records fulfill their needs first and the patient's last.

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kjuneja t1_iz1po0k wrote

>There's not going to be a standard way to code a previous abusive relationship.

IDC codes get updated all the time.

Obviously EMRs are not the solution. They are adjacent technologies made for a different purpose

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