I’m a high school special education teacher who teaches in a substantially separate life skills classroom for students with profound autism and multiple severe disabilities. I regularly interact with the post graduate teacher (who works with students ages 18-21) and she always tells me how much tougher it is now for students and families once they turn 22. Dayhab programs don’t have enough staff to fully operate. Waitlists are extremely long for dayhab and community residential/group homes. My interactions with DDS (Department of Developmental Services) in the past to support my students’ families have always been a mess. There is so much turnover there and I felt like I talked to a new family case manager and supervisor every 6 months. I highly suggest everyone read this article which highlights the struggles families face with young adults who have profound/severe autism.

I will DM you, but I highly suggest you continue to remain a vocal advocate for your children during their IEP meetings at their school. Make sure your children are working on functional academic, life skills, and vocational goals/objectives. Are your children verbal or do either of them use a communication device? Make sure they continue to gain exposure out in the community whether it be ordering food at a restaurant, purchasing groceries, or interacting with others.