Viewing a single comment thread. View all comments

russellvt t1_j8f296h wrote

Reply to comment by AlternativeSign272 in I am a 15f with diagnosed aquagenic urticaria - an allergy to water. Ask me anything! by AlternativeSign272

> Then, after a few different dermatology/allergist visits, I was formally diagnosed.

No offense, but considering how ridiculously rare this disorder is (like 50 to 100) documented cases... "a few' visits would seem low (ie. Took me "a few" just for a regular allergy panel with treatment, etc)

5

AlternativeSign272 OP t1_j8fcwwx wrote

I went to my local derm, who then referred me to Children’s in Boston. I went there, was formally diagnosed and prescribed over-the-counter antihistamines. Those didn’t work, so I went back! They said, basically, “we don’t know what to do, we’ve never seen this before, if you’re okay with the reactions then just leave it be, watch for trials and new treatments.” (Something along those lines.)

1