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gavebirthtoturdlings t1_j59z3ao wrote

Hello! What do you wish people understood the most about living with Crohn's? I'll be the first to admit I'm quite ignorant on the subject but I want to know more. Hope you're as okay as can be buddy.

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CrohnsBoyTheThird OP t1_j5a05lu wrote

Hello !

Great question - don't worry about your ignorance ! I know nothing about diabetes or other diseases so no stress !

Crohn's is a disability.

Crohn's isn't like IBS. Crohn's isn't just diarrea and pain and having a funny stomach.

It's infectious flesh tunnels in your organs (Fistulas), internal bleeding, sepsis, increased cancer risk, major surgeries, colostomy bags and shame and fear.

Nobody knows what causes it or what cures it. It's likely an umbrella term for a lot of varied causes that cause the symptoms, chronic and recurrent inflammation in your GI tract and all the complications that come with that.

It's a constant companion that you feel every day and think about thousands of times a day, it's the thing in your life that will always seemingly hold you back and return at the most inopportune times, it's your monkey on your back and there's seemingly no cure.

It feels like an unslayable dragon.

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gavebirthtoturdlings t1_j5ak29u wrote

Wow. Really appreciate your reply mate, thank you. I can't begin to imagine how things are for you but I hope you feel better or at least as well as you can be soon.

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