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AitchyB t1_j5v6wh7 wrote

Reply to comment by _Skyhopper_ in An ALS patient set a record for communicating via a brain implant: 62 words per minute by esprit-de-lescalier

Could she use something like proloquo or similar AAC or does she not have motor skills to select the words?

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_Skyhopper_ t1_j5vdeox wrote

>proloquo

She has limited motor skills in her right hand. I have her a device that has 12 preset words she can use, but she has difficulties pressing hard enough to get the device to speak the word for her. But prologuo is tablet based, which she might be able to do. I'll look into a prologuo. Thank you for the idea.

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screaminmeemie t1_j5vt83s wrote

Take her to a speech pathologist who can assess her communication needs and help you get an insurance-funded communication device.

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opossumwranglerr t1_j5w2o40 wrote

Yes! I am an SLP and this is the thing to do. It is literally our job to pair each client with the best device for their needs and skills and train them and the family how to use it. Fair warning though, here in America getting the device through insurance can be a long and annoying road.

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Beowuwlf t1_j5w2egt wrote

This^^^ there are specialists out there who will get you squared away as best as possible

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oddballAstronomer t1_j5xklos wrote

There’s also CoughDrop which was developed by autistic adults and is only 8$ a month. You can design custom boards or use presets and they have ones geared towards adult communication. It’s also one of the few that will let you say “fuck” which like… man all adults should be allowed to do!

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ArcherBTW t1_j5xojde wrote

Not being able to say „fuck“ for too long is awful

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rpgguy_1o1 t1_j5wnnx9 wrote

Just curious, what are the 12 words?

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_Skyhopper_ t1_j5yrjc4 wrote

The words are: Hello, Goodbye, Yes, No, I'm Hungry, I'm Thirsty, I'm Bored, How are you?, Shut Up, I Love You.
At least, those are the words I can remember off the top of my head.

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