Viewing a single comment thread. View all comments

mikeagimp t1_iszv3z3 wrote

Spina bifida kid here, I’m 38. Only live to 20? That ain’t real. I have a bladder made of my intestines, more surgeries than I can remember (20+).

11

superduperman6 t1_it11che wrote

Poor guy. So does this new clinical trial make you feel better? What's amazing to me is they're so confident in this stem cell patch technique that they're going to try it on babies who have already been born but suffer from spina bifida, they think they can help babies who have already been born. These placenta stem cells are supposed to be pretty dang revolutionary.

2

mikeagimp t1_it1zxjw wrote

They have been doing corrective surgery in the womb for awhile. For me, this is my life, I know nothing else. I find it hard to believe anything is going to fix nerve destructing. I had a grapefruit size tumor at the base [L4] of my spine, it was a spaghetti mess, I don’t see anything fixing that. Bad nerves, bad muscles. Ain’t no quick fix.

2