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__neone t1_iqon705 wrote

GINA provides some protection but I don’t think it’s sufficient.

However, PGx is not sequencing. I think that understanding drug reactions is important enough, and no worse from a privacy perspective than knowing what you’re allergic to, that it should be more widespread.

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VitaminPb t1_iqooz71 wrote

But I can guarantee you that within a few years of it becoming common, some police group/politician will decide that all those test sequences will be stored in a national database to “solve crimes” or “provide medical information”, just like everybody who is arrested or raped or joins the military has their DNA swabs taken and put into the criminal databases now. (See the recent case in San Francisco of the woman who was raped having her DNA used to arrest her later for crimes.)

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__neone t1_iqopvci wrote

Yes, I agree.

Again, that’s why doing marker-based gets the value without the sequence. I can tell some of your genotype based on phenotype (eg eye color). Testing for a few very discrete SNPs can save your life through knowing about drug reactions. Same as eye color, very small data point, not enough to do damage.

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